My 14 year old daughter, Jurie has PACC

[Jody]

My 14 year old daughter, Jurie, has recently been diagnosed with Partial Agenesis of the Corpus Callosum. We always knew that something was different about Jurie, but nobody could truly pinpoint the exact cause. Now, we finally have a diagnosis. Jurie has had vision problems all of her life, and we always attributed her problems to this. She was born with strabismus(her left eye was crossed in), slight nystagmus, amblyopia, astigmatism, and very far-sighted. Now, we know even the causes for these problems; the PACC. She also has always been very fine and gross motor skill delayed, no sense of direction, very poor handwriting, can't tell her left from her right, had a very difficult time in school ( I have home-schooled since 3rd grade, and she does much better), OCD ( which is getting more pronounced as she gets older), very routine in all she does ( she gets highly agitated if her routine is changed---she has had many temper tantrums over this), sensory integration problems, extremely talkative. Teachers in the public school tried to get us to test her for ADD because she had a very difficult time paying attention. Jurie is having a tough time with high school. She is doing great in Etymology, English, Health, and Geometry; she does great with the math subjects only because I sit beside her the whole time and make sure she understands everything---which she does. The subjects which are very difficult for her are: Literature, World Geograghy---especially the maps, and Biology is somewhat difficult. These are especiallly hard because of all the reading. She reads perfectly well; she just does not comprehend anything she reads. I have had to help her a lot this year in this matter. She seems to have a photographic memory when it comes to anything that has ever happened in Jurie's life. Anything she sees or hears, she remembers everything about it---including the exact time. She just cannot read and comprehend anything or problem solve very well.
We are blessed to have Jurie. She is extremely healthy. She was having seizures; petit mal and complex partial focal seizures. The medications we tried were horrible and one even toxic to her system. We prayed for healing, and the next EEG showed no abnormalities. Praise God!!! This was 9 weeks ago---she is still seizure free!!!!

[digg45]

my daughter is 13 and we have know since she was months old that she has abscence of the corpus callosum, i was wondering how your daughter does in math, casey is in 6th grade and is in public school on a IEP, she get lots of extra help and almost every class now there are only 5-9 kids in her class,but she can not get the concept of money at all, she has been working on it for soo long and it makes me so nervous for her future??