Hello, my name is cassie. My son Lucas was diagnosed with C-ACC on 7/28/10. We wernt aware of what they were looking for when they did the MRI, but I'm glad to know early on. He's a happy normal baby and I love him so much, I just worry about the battles he'll have to face when he gets older. I know it varies from case to case but if you have any insite to what to expect or some websites that have good information, I would greatly appreciate it.
~Cassie
